Innocent girl turning into ‘stone’, one in 20 lakh people suffers from this rare disease

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A five-month-old baby girl in the UK is turning to stone due to a rare disease. The fatal disease related to this gene is called. In this disease, the human body starts turning into stone. The family members of the child have now warned parents around the world about the possible symptoms. The girl’s name is Lexi Robins. This rare disease occurs in one in 20 lakhs. Lexie was born on 31st January last. His parents Alex and Dave are residents of Hertfordshire area of ​​Britain. He found that there is no movement in the thumbs of the child’s hand. At the same time, his toes are quite big which is not a normal thing. It took a long time for the doctors to diagnose this deadly disease of the child.

Patients’ life is about 40 years
In this deadly disease, the muscles and connecting tissue turn into bone. In this disease, the birth of bones starts outside the skeleton. This is often referred to as turning the body into stone. People suffering from this disease fall into bed by the time they reach the age of 20 and their life is about 40 years. Lexie had an X-ray done in April. It was found that he had a bunion on his leg and the toes of his hand were joined twice. Lexie’s mother, Alex, said, ‘Initially after the X-ray we were told she had a syndrome and would not be able to walk. We could not believe it as she was physically very strong at that time. She was shaking her kick. We were not completely sure, so we did research in mid-May. We found that he has this disease. We took him to the specialist. We got him genetically tested in America. In this his illness was detected. Now this child can neither get any injection nor vaccine. She will not even be able to give birth to a child. Scientists are now struggling to save the child’s life.

[Attribution to NBT]

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